My pediatric practice is one which harkens back to days long ago when physicians knew their patients and pertinent medical histories by heart. My 81-year-old father and I were in practice together for the past 16 years; he still used the very sophisticated “hunt and peck” to compose emails. The task of transitioning to an electronic record system seemed insurmountable, so we remain on paper. Our medical record system has not changed in almost five decades. I would not have it any other way.
This past spring, he walked into my office shaking his head in disbelief after thumbing through a stack of faxes. “Can you believe this 16-page emergency room note has no helpful information about the patient?” This was not a shock to me. The future of medicine will include robots who are paid to collect reams of useless data to provide nothing in the way of health or care. Regardless, the government and third-party payors will extol upon the virtues of their inept system as life expectancy falls.
Fifty years ago, there was a close relationship between a physician and their patient grounded in years of familiarity. Physicians took a history, performed a physical exam, and developed an assessment and plan. Diagnosis in a child with fever would be descriptive, like Bacterial Infection, Otitis Media, Fever of Unknown Cause, or Viral Illness. Parents were advised to provide supportive care, involving clear liquids, fever medication, and follow up precautions if the child worsened.
At the dawn of the technological age, the effortless simplicity previously existing between physicians and patients has all but evaporated. It was traded away without our consent, relegating the role of physician to that of a data-entry clerk. Physicians are discouraged from synthesizing information and utilizing it to guide our decision making. Today, a 16-page document “appears” to contain crucial elements such as chief complaint, past medical and surgical history, medication list, and allergies, however, the information is then followed by more than a dozen pages of waste.
The particular case to which my father was referring involved a 5-year-old child with fever. The provider documented the sexual history of this child, whether he was single or married, and whether or not he had children of his own. My dad and I started chuckling as we contemplated collecting this kind of extraneous information from a child who had not even entered puberty. As one would suspect, our young patient was single, as in not married; he had no children (which is physiologically impossible), and his years of formal education were noted “not pertinent to his medical situation.” Interestingly enough, I volunteer at the school where this young boy attended kindergarten; his classroom was next door to the one with my second oldest child. Three of his classmates were out with febrile illnesses, however technology cannot incorporate this kind of alternative data.
We kept reading and laughing. Occupational history was recorded as not on file; running a bustling lemonade stand in his neighborhood apparently was not clinically relevant. It came as quite a relief that at the tender and impressionable age of five, this boy had managed to steer clear of regularly smoking cigarettes. It was comforting to discover he had never used smokeless tobacco either; and for some reason, I never thought to inquire about such things before (insert eye roll.) He also denied alcohol use, restoring my faith in the fact that not every youngster was consuming alcohol during their formative childhood years.
Just when I thought things could not get more absurd, I came upon the sexual history; contemplating whether or not a five-year-old child was engaging in consensual intercourse was nauseating. I reminded myself that data entry clerks were devoid of emotion and instead were tasked with collecting “critical” details to practice by protocol. Sexual history: Not on file.
The final summary and diagnosis section was the most entertaining part, which read: “primary diagnosis: none.” Seriously, are you kidding me? No diagnosis? This is the future, technology will seal the fate of our profession as one entirely devoid of the need for any cognitive skills. This earth-shattering conclusion after sixteen (16!) pages of documentation was utterly astonishing. Despite the considerable time and effort invested asking a febrile five-year-old whether he was married or having consensual sexual intercourse in his spare time, little to nothing was provided in regard to healthcare.
At this point, my father and I laughed so hard that tears were running down our cheeks. There is no other reasonable response to the sheer waste of time, resources, and education invested in becoming a physician. Doctors have spent decades honing their clinical skills and should be entitled to choose the documentation method they find most effective and efficient. Some physicians find electronic records helpful and should be encouraged to use them. My pediatric practice will keep surviving on a shoestring, a prayer, and good old-fashioned paper. It warms my heart to know each chart note contains helpful information and not one human being leaves with NONE as their diagnosis.
Footnote: Page 16 states: “This chart is intended to document the majority of the information from this patient’s visit today. Other items, such as the patient’s care timeline, are reported elsewhere and should be reviewed to better understand this encounter.” (More eye rolling.)
By all means, if 16 pages did not cut it, twenty more should make sense of arriving at no diagnosis. Forgive me for not running out and requesting those records immediately.
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I saw your recent column on KevinMD and was inclined to comment and sadly those comments were closed. You seem to strongly dislike both digital medical records and refferals.
First, most of your complaints about digital medical records are really complaints about regulatory overburden and corporate legalize (document everything, even if its useless in an attempt to avoid lawsuits). But it misses the positives of digital records. As a patient I can keep copies of those for myself and question gaps or holes in the narrative. I can also make sure my concerns are being properly followed up on.
You also seem to dislike refferals, seeming to suggest that specialists are not necessary. I see 7 different doctors, and I suspect ill be adding a transplant team to that list in the next year or so. I had a doctor that thought the same was as you and we spent a year running in circles with him “knowing” what was wrong and prescribing things to fix it. I finally gave up and went to another doctor who immediately referred me to a gastroenterologist who performed a colonoscopy and had a diagnosis, UC. Fast foward 6 years and my gastro notices (vastly) elevated liver levels. 3 months of testing and exclusions and we come to a diagnosis, PSC. Or my diagnosis of anterior basement membrane dystrophy that required a referral up 3 levels to the best eye surgeon in the city before we figured it out? (thankfully no surgery needed yet).
I can pull up my chart on my phone to show another doctor if I need too. If their in the same hospital network they can pull all my records why sitting in the room with me instead of faxing over *hundreds* of pages of test results, pathology results, radiology results, etc etc. Actually thanks to all those records I already know my wife is a (probable) living donor match for liver donation if it becomes a requirement down the road.
Almost all my doctors know my name and recognize me. My gastroenterologist of 12 years has called me from vacation over concerning test results and I have his personal cell number (which I hopefully never need to use).
In 1960 the US had 180m people and 260k medical doctors. In 2015 we had 320-330m people and slightly more than 1m doctors. So we technically have 2x as many doctors per patient as we did in the “golden days” of medicine. Yet we non longer have the “neighborhood doctor” culture we did then. The question is why? My guess? Patients like me. Modern medicine has extended peoples lives, but most crucially, its *saved* the lives of a subset of patients who would have just died before adulthood or early in adulthood from complications due to their conditon(s). I’m definitely among that cohort. I absolutely *dominate* healthcare costs and expenditures. My medications alone (before my colectomy) approached 1/4th a million dollars per *year*. My hospital bill for the colectomy was cheaper then a single dose of my “biologic” medication! My lifelong care will stretch into the many millions of dollars. Contrast that with my 90+ yo grandfather who spent almost no time with doctors until his last couple years, and even then the costs were low and then he died (ending all future costs).
As for digital medical records being hackable, that is a risk. Thankfully its not a concern for me personally, if someone else wants to see the records their welcome to them. Maybe they will see something someone else missed. Clearly I don’t (and shouldn’t) represent the majority here.
So i guess what I’m saying is, for those of us who are *really* sick, digital medical records, specialists and refferals, and expensive modern care are all pretty amazing and vital. I wish I had a GP I saw once a year for a physical and who could stamp my pilots medical certificate but those days are long long gone. And if my only care had been a single neighborhood GP back in the 60s, I’d be gone as well.
I am so glad you have wonderful medical care and that your specialist physicians know you by name. A certain proportion of the nation need specialty care and as a primary care physician, I am so grateful to them. Unlike you, many patients feel more like numbers to their care teams, prefer to be looked at while they are being talked to (instead of having their physician enter information into a computer,) and want one doctor to manage their condition. That is the segment of the population to which I am referring. And yes, even us lowly primary care docs can manage many “sick” patients. We trained for many years to do it. It doesn’t sound like you put much stock in us as a group. Many of us are quite capable of managing many different conditions and even making proper diagnoses. If you like what you have, then by all means, keep doing it. Best wishes to you.